Reports to: Senior Engagement Officer, Public and Patient Engagement
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Drawing from the largest portfolio of research available in the U.S. that involves patients, caregivers, clinicians and other stakeholders as research partners, Engagement Officers serve in a unique role to collaboratively build an evidence base for patient and public engagement and to accelerate change in the culture of research in the US and beyond.
Under the direction of the Senior Engagement Officer of Public and Patient Engagement, this position will develop engagement expertise in a portfolio of disease/condition studies (e.g., Multiple Sclerosis, Opioid Use Disorder, rare diseases); facilitate the conduct of PCOR by providing technical assistance on engagement approaches within PCORI-funded Research and other Awards; develop tools and resources to support meaningful engagement in research; identify and disseminate promising engagement practices; and support PCORI’s organizational engagement efforts in engaging with stakeholder communities.
Duties and Responsibilities
Conducts systematic assessment of engagement activities within funded portfolio areas to identify what engagement activities are occurring, how they are occurring, and identifying the barriers and facilitators to meaningful and successful engagement
Translates engagement practices and theories to actionable engagement resources to share with PCORI staff and research community
With Public and Patient Engagement, plays a leadership role in conceptualizing, and executing strategic objectives and special projects that contribute to and advance the Science of Engagement
Collaborates with cross-functional teams in the identification, development, and refinement of monitoring and evaluation tools necessary to facilitate meaningful patient and stakeholder engagement in funded PCORI research
Conceives and conducts webinars, prepares abstracts and presentations for conferences, and develops manuscripts to share promising practices in engaged research to advance the science of engagement
Reviews proposals for the Eugene Washington PCORI Engagement Awards program,
and performs other Engagement Team related tasks as necessary
Supports the development and implementation of engagement-focused training seminars for internal staff
Assists PCORI program officers, research teams and patient/stakeholder partners with engagement questions or challenges during the life cycle of research projects and facilitates communication between awardees around engagement challenges
Outstanding interpersonal and teamwork skills; collegial, energetic, able to develop productive relationships with colleagues, awardees, consultants, external funders, and others who contribute to program development and management
Excellent written and oral communication skills, including public presentation skills
Experience desired in the development of tools and guidance to support engagement
Ability to work independently and to manage projects and people
Ability to travel, as required, including site visits and representing PCORI at external meetings
Understanding of the research process from generating a research question to dissemination
Broad knowledge and appreciation of patient/stakeholder engagement practices
Broad knowledge in health policy, healthcare systems organization and structures and payment policies
Master’s degree or higher required
Knowledge of Comparative Effectiveness Research and Patient-Centered Outcomes Research preferred
Minimum of 3-5 years relevant engagement experience that may include:
Experience as a healthcare professional (nurses, physician assistant, or other front-line clinician) who has championed patient- and family-centered care and systems improvement
Experience with management of or participation in a grant or contract award focused on engaging clinicians, medical specialty organizations and/or health plans
Involvement in efforts by medical specialty groups, patient or other stakeholder advocacy organizations, or health policy organizations, to partner with or educate researchers on engagement
Experience on patient and family advisory councils and skilled in working directly with clinicians, health systems and researchers
Experience in patient engagement in meaningful use, data networks, patient-reported outcome development, development of quality metrics, data privacy issues and other data research infrastructure development
Internal Number: 806-858
About Patient-Centered Outcomes Research Institute
The Patient-Centered Outcomes Research Institute (PCORI) is authorized by Congress to fund and disseminate research that will provide information about the best available evidence to help patients and their healthcare providers make more informed decisions. PCORI’s research is intended to give patients a better understanding of the prevention, treatment, and care options available, and the science that supports those options.